WILD Support Meetings
Join our in-person medical support group meetings and connect with others affected by IPF. Our meetings provide a safe space to meet fellow patients and carers, share experiences, and learn from the medical community. Stay up-to-date with the latest information on IPF and get support to help understand how to live with and manage this condition.
JANUARY 26 WILD SUPPORT MEETING
Date: Friday 23rd January 2026
Time: 12:45-16:00 PM
Venue: Crosfield Hall, Broadwater Road, Romsey SO51 8GL [LINK]
Agenda:
12:45 Public Entry
13:15 Welcome Talk
13:20 ILD Management Updates
13:40 Symptom Control in ILD
14:00 Coffee Break
14:15 Parallel Workshops: Physiotherapy & Singing
15:05 ILD Research Updates
15:20 Social Marketplace & Closing
Download the PDF W.I.L.D. Support Invite. Click here.
Presentation (click to download)
PREVIOUS WILD SUPPORT MEETINGS
Presentation (click to download)
Date: Monday 14th July 2025
Time: 2:00pm to 4:00pm
Venue: Crosfield Hall, Broadwater Road, Romsey SO51 8GL [LINK]
Agenda:
- 14:00 – 14:05: Welcome and introductions
- 14:05 – 14:10: Research Fellows / Research nurses Update on research at Southampton into ILD
- 14:10 – 14:20: Dr S. Fletcher (Resp Consultant) ILD Update
- 14:20 – 14:30: Mr T. Roberts (Irwin Mitchell LLP, legal and financial experts)
- 14:30 – 14:35: Sarah and Michelle (ILD Clinical Nurse Specialists)
- 14:35 – 14:45: Mr E. Banfield (Southampton Hospital Charity)
- 14:45 – 14:55: Ms J. Stoward (Action PF)
- 14:55 – 15:05: Dr K. Spinks (Resp Consultant) What is ILD – Facts and myths
- 15:10 – 16:00: ‘Social Marketplace’ Coffee break
This will be a chance to get to know one another over a cup of tea, as well as interact with knowledgeable support organisations, including:
- Dolby Vivisol (home oxygen)
- Action for Pulmonary Fibrosis
- Research team
- Psychology team
- HASAG team
15:55 – 16:00
Thank you and end of meeting
16:00
Close of meeting
PREVIOUS WILD SUPPORT MEETING
Date: Friday 17th January 2025
Time: 10:00am to 12:00pm
Venue: Crosfield Hall, Broadwater Road, Romsey SO51 8GL [LINK]
Agenda:
· Research Fellows/Research nurses Update on research at Southampton into ILD
· ILD-Specialist Pharmacist Supportive Medicines for ILDs
· Respiratory Health Psychology + (45 min interactive session)
· Action PF fundraising
· Lead Dietitian for the community team Nutritional advices & weight loss
· Dolby vivisol (Home Oxygen) updates
· ‘Social Marketplace’
· Coffee break
Wessex Interstitial Lung Disease (W.I.L.D) Patient Support Group Relaunch!
The last year has been difficult for everyone but especially for patients and carers of patients with ILD. On behalf of the W.I.L.D team we have all missed meeting up at patient and carer support groups for tea and cake and a catch up.
Whilst we are waiting (and looking forward to) COVID being but a memory, we thought it would be important to provide the opportunity for W.I.L.D members to make contact with other members of the group as well as the clinical team in a virtual platform.
We would therefore like to invite you to join our virtual meetings.
If you would like to join the meeting please email ILDclinical@uhs.nhs.uk so we can forward you the invite.
During the meeting we will try and follow a similar format to the meetings at Fleming Park. With a talk from the experts (Dr Fletcher and Dr Spinks), break out rooms for catch-ups, an update on local ILD research opportunities, a talk on non-medication based cough therapies, as well as sharing a virtual cuppa!
Contact us on the email above if would like to join the meeting but need advice on how to meet via Zoom.
On behalf of all the W.I.L.D team,
Best wishes and looking forward to seeing some of you virtually at the W.I.L.D meeting in September
NEW TO ZOOM?
Read on to learn how to join our virtual meetings
Step 1: Download and Install ZOOM
You can use ZOOM on many devices, either a laptop, desktop, ipad or even your smart phone.
To download the application navigate to https://zoom.us/download and download the application for your device.
Step 2. Install ZOOM
Once you have downloaded the ZOOM application you’ll need to install it. Read each step carefully and install similar to how you would any other application.
Step 3. Joining our meeting
To join, please email ILDclinical@uhs.nhs.uk so we can forward you the invite. . Ideally you only need to click the link and then the ZOOM application automatically opens and joins our meeting.
If for any reason the link doesn’t work for you, you’ll need our meeting ID to join the meeting manually, you’ll also find this in the email. Open the ZOOM app on your device and click “Join Meeting” then enter our meeting ID.
Step 4: Device audio & Video
Most modern devices will automatically join ZOOM with your video and audio already turned on. During the virtual meeting you may wish to mute your microphone or turn off your video. You’ll find these controls on the zoom page.
Step 5: Join a test meeting (optional)
To test everything is setup and familiarise yourself with the application you can join a test meeting by clicking the link below on your device: