Have you or a loved one been diagnosed with Idiopathic Pulmonary Fibrosis (IPF)? If so, we would like to know your views on IPF care in the UK.
In July 2015, Action for Pulmonary Fibrosis (APF) conducted its first patient survey to assess the extent to which the NICE guidelines were being implemented and benefiting people living with IPF.
We are repeating the survey in 2018 to see whether care of IPF patients has changed since 2015 and to identify where greater effort is needed by the NHS.
We aim to raise awareness of the issues facing people living with IPF and to help to improve the care the NHS provides. We will use the results to campaign for better care and treatment for IPF and other pulmonary fibrosis patients.
We are seeking responses from all parts of the United Kingdom. Whether you live in England, Wales, Scotland, or Northern Ireland – we want to hear from you!
Given your experience of living with IPF, we would really appreciate it if you could take ten minutes to complete the survey. It should be completed by an IPF Patient or their main carer.
To complete the survey visit:
The deadline for responses is 5pm, Friday 13 July.
If you face any difficulties in completing the survey or would prefer to receive a paper copy of the survey, please contact firstname.lastname@example.org or phone 01543 442152.
Chair of Trustees, APF